Видео

Everyone, please go listen to Dr. Maggie on pots, it's just an autoimmune disorder, and I have it to working on correcting it. You need to find a doctor who will check all your vitamins, minerals, and eletralits. And for any autoimmune deases. They can be treated.

I have a service dog 🐕‍🦺

I don’t suffer with chronic migraine but I suffer with ACM, will definitely use some of these tips!

My heart goes 2x-3x as fast as it should when I go from laying down to standing up. My doc thinks it could be POTS. I’m thinking if I have it and if my anxiety meds don’t work imma talk to my doc about a Service dog. My heart rate goes up really fast causing me to occasionally faint then leads to a panic attack after. I get dizzy after walking for a while and or standing. And I just feel like I could benefit off of a SD. I have my dad on my side (he suggested one first) I just need to ask my mom and stepdad, and if they are on board then I’ll talk to my doctor. I just feel like she’s gonna say no but I think it’s mainly bc of my anxiety disorder (I have a bad case of GAD.) what should I do?

I’m pregnant with my second baby. Also another girl and my girls will be 15 months apart. Maybe it’s the hormones, but I’m totally tearing up right now listening to you talk about how your girls are experiencing everything together and are best friends. This is the video I needed to watch today. Thank you for sharing. All the love to you and your family. ❤

I ve been wanting to not tounge tied for my whole life im 40 and divorced lol probly time to do this??

My doctor said migraine sufferers were notorious for "hoarding" meds. I like how you explain that we're pushed into that by insurances that approve only limited amounts of meds, causing us to be reluctant to risk using one of our precious meds on something that has a chance of going away by itself. This has totally been my situation for about 35 years.

I have wanted a service dog 🐕‍🦺 ever since I was 5 years old but I couldn't have a service dog 🐕‍🦺 because my mom is scared of dogs and I respect that and then when I moved into a care facility I still wasn't allowed to have a service dog 🐕‍🦺 and again I respect that to even though it is really! Upsetting to me and also I was diagnosed with cerebral palsy when I was 2 months old

Not sure what IIH is!

I watched this for the first time 11 months ago, and here I am at 26 hours of my owm flat test. Its harder than it seems!

Thanks ❤

Girrrrrrrl I wish I could have a long convo with you about jaws/tongues. My jaw journey is long, 20 years at this point. I only JUST learned I have a tongue tie yesterday. I can’t believe that, after all the specialists I’ve seen and issues I’ve had. I’d love to chat with you more about your history and experience 😂 My new-to-me Dr has a plan I might go for. I’m shy with “permanent” changes with my teeth and jaw because I have a great smile and great teeth, BUT what he’s proposing makes sense. Sleep study, then Invisalign to widen my smile. He says palates are fine but the smile is narrow on the and my tongue can’t fit, which he feels he could make fit but the widened smile plus tongue tie release. The release isn’t a sure thing in his plan. He wants me to start myo therapy halfway through wearing trays, then evaluate if I should get released. I know a release can’t be undone but if trays don’t work I imagine I can do something to put my teeth back like they always were… I’m on IG if you feel like reaching out. Always down for a talk about the mouth - lord knows my husband is tired of me talking about it 😅

Congratulations on your journey to recovery. Please let us know what to do to recover from IIH.

My sdit has a “fake sd harness” except in purple but I’m getting my hybrid this Monday that I got off of Temu (they have really good gear but a lot of fakes) and I also got 2 patches “Stop! no touch, no talk, no eye contact” and “service dog do not separate from handler”

I had the pots Syndrome since I was 17 years of age and have been treated like an hypochondriac all my life, I almost taught of giving up, they my friend from Africa recommended me to a Nigeria herbal doctor on RUclips, who help me solved my problems with adding to it, he was one amazing soul I ever came across during the treatment process I will say he was my therapist. GOD bless #drobaedo on RUclips. :.:.❤

HYPOHYDROSIS AND DEHYDRATION. Sweating and fainting from salt loss. THE WORST.

Pots dogs can also pick up objects you have dropped so that you do not have a vasovegal response and faint when you bend over to pick them up. That is HUGE for me!

Doing this tomorrow - EBP. Non targeted as haven’t located exact leak - just problems with MRI and want brain back to normal. If that’s possible as a RN / mom lol. Thanks for this information and doing this for us with CSF leaks ! Appreciate this VERY MUCH! 😊. So grateful !

I'm 66 and was diagnosed with tongue tied 2 years ago.

Puppies never want to mess in their beds so it makes sense that babies dont want to be wet or poo. How smart are these little one.

Dog butts give me a headache

I soooo appreciate you praising your hubby! Good Hubby's need all the praise!❤️❤️❤️ My Hubby saved me during my post party phase. ❤

I know I’m late to this but I really wanted to message as I’ve got IIH and also CSF leak! I’ve had it for around 7 years now with the doctors not wanting to treat anything as my “body is doing its own shunt” I’ve now been put on weight loss injections as some evidence indicates it can help lower the pressure (also via weight loss) I just wanted to see if they had even given you any indication of treatment for the leak itself? It’s so scary 😢

I also experience that whooshing in my heart. My first doctor dismissed it, but it makes me feel really sick and out of energy when it happens.

My daughter was just diagnosed with, she’s a 25 year old Down syndrome girl.. this disease is crippling her.. she’s lost 36 lbs.. but has major body pains? Does anyone know of body pains and treatment?

I’ve had rem sleep stage tachycardia (only) for several years. Recently my vision is worsening with double vision and occasional stars. For 23 days both arms have been numb to varying degrees and I now suffer hemiplegic migraine symptoms directly after each tachycardia episode. MRI shows no new stroke, I’ve suffered 2. 23 days of ringing ears. I have migraines and headaches chronically but lately these symptoms don’t seem migrainous. History of migraine and anxiety has doctors hyper focused that these are the cause. Issues improve when vertical and worsen when horizontal. So many similar symptoms to what’s expressed in this video. Will be discussing this with a neurologist on Tuesday. Also, a weird symptom - I get worse when I leave my house and go outside into big spaces. I’m NOT agoraphobic. But if I go outside too long I get extremely exhausted and am worn out that night. It’s strange.

I just found your channel. So helpful’ I have had migraines for years. I had a neurostimulator put in in 2020. It has helped a lot. Now, I have POTs, possible HATs, and I am on TPN for gastroparesis. I want to train my pup to be my service dog. (To alert BP drops- yes, my BP drops when I stand and my HR goes up.) If you have any tips for training- please let me know. My dog is still a pup, but he has been really trainable.

I just had a consultation with a myofunctional therapist yesterday and she diagnosed with a grade 3 tongue tie. I have forward head posture, get migraines, experience tight neck/shoulders/traps, and have a hard time breathing through my nose. You video was the first one that came up searching for "frenectomy results"! This is a really helpful video - thank you for sharing!! I feel like you experienced a lot of the stuff I'm also experiencing. I also have a more narrow upper palate. So I'm hoping that the myofunctional therapy helps with that before and after the frenectomy.

I am going through something very similar right now. My arms and legs have been varying degrees of numbness for over 3 weeks and I’ve had inappropriate sinus tachycardia that seems to be related somehow. Doctors believe it’s anxiety and migraine. But I don’t believe that “guess”.

Have you looked into MEWING? These methods were suggested to me to do prior to a TT release.

It's great....but ohmylanta the price.

So. I can't answer questions when I have a migraine

I live in British Columbia, Canada, and my family Dr refuses to order an MRI for me. She said she would refer me to a neurologist but in BC the waiting time is 3-5 years if your Dr says it's "non urgent" I would like to learn more about leaking. Sounds strange but cluster headaches aren't called Suicide headaches for nothing and I would try anything at this point.

Does this work for Cluster headaches ?

You are the first person who has described what I go thru. My c2…unstable, vagus nerve problems, the throat thing you talked about…I’ve had that happen. I am about 7 weeks into a flare that has centered around severe occipital pain, tightening and burning/nerve pain. I see an atlas chiropractor but I feel like something is being missed in my c2. I am getting tmj treatment for rather severe symptoms and it’s so debilitating at times I’ve had to go on fmla which thankfully in my state they pay you. Looking for other providers as many of mine have retired or moved. I will say I saw a PT who specialized in neural manipulation from Barral Institute and if you are someone who is suffering in this way try to find a provider who does this. It helped so much. She balanced my vagus nerve and dura and was able release some of the occipital tension but she moved and I’ve tried two others to know they are not for me. I’m gonna see a neurologist just so I can get an MRI of my upper cervical. Most meds of any kind don’t work for this type of pain. The most pain relief I get is when my neck is in alignment and the adjustments holds. Just two cents to my story ✌️❤

You are the first person who has described what I go thru. My c2…unstable, vagus nerve problems, the throat thing you talked about…I’ve had that happen. I am about 7 weeks into a flare that has centered around severe occipital pain, tightening and burning/nerve pain. I see an atlas chiropractor but I feel like something is being missed in my c2. I am getting tmj treatment for rather severe symptoms and it’s so debilitating at times I’ve had to go on fmla which thankfully in my state they pay you. Looking for other providers as many of mine have retired or moved. I will say I saw a PT who specialized in neural manipulation from Barral Institute and if you are someone who is suffering in this way try to find a provider who does this. It helped so much. She balanced my vagus nerve and dura and was able release some of the occipital tension but she moved and I’ve tried two others to know they are not for me. I’m gonna see a neurologist just so I can get an MRI of my upper cervical. Most meds of any kind don’t work for this type of pain. The most pain relief I get is when my neck is in alignment and the adjustments holds. Just two cents to my story ✌️❤

Her personality ❤❤❤

So detailed thanks❤❤❤❤😊

Good for you... But... I had 3 myelograms, each followed by fast CT, with enough contrast to bring on vomiting... Next day, 45 ml untargetted EBP, which was pretty much like having two or three heart attacks... I had to ask them to pause two or three times, with level 9 pain ... The following year, I was lucky enough to have another try at diagnosing my apparent SIH leak... again, sadly, no diagnosis. I had another EBP, 50 mL, and this time was, comparatively, s breeze.(Sadly, no improvement, I have a very rare, and "refractory to diagnosis ") Nurses told me that the procedure is quite variable, and patients have different pain thresholds, and some came back in tears, others, "no sweat". Only so that patients are prepared for some pain, and, if it's tough, ask for a short pause... even a minute pause helps a lot. Don't be freaked out about it, just be prepared for a range of possibilities, and think about the upside of the possible improvement in your life.

Thank You for this very informative and humorous video!

I went through my first miscarriage in June and if anything brings me peace, its that im not alone

Was it a mild tongue tie? Mine is mild, not sure if it would be worth it to release

You can get a service dog for pregnant women?

I'm a veteran with PTSD and a TBI, I'm almost 3 years sober and got a dog, that I just adore. I'm looking forward to getting her trained

Wow I never knew that people with a migraine experience that. Your husband is very supportive.

Dear Jen, I have the same problem. It was initially caused by an epidural X-ray contrast called Pantopaque an and X-ray called a Myelogram (pre MRI days of 1977). The drug is poisonous to many patients and can cause Progressive Adhesive Arachnoiditis. This in turn causes daily extreme leg and lower back pain and in turn causes inter cranial pressure fluctuations and BP fluctuations. I was cured of the migraines as they were in fact caused by high BP. I had a laminectomy to fix my ruptured disk discovered by the neurosurgeon using the Myelogram. However the damage from Pantopaque was done. It’s incurable. I’m 68 and had it since 1977. Had many epidurals for anti inflammatory pain relief. I researched numbers of U.K. patients with chronic back pain post Pantopaque withdrawal for sale and numbers did not show significant decline. Many women have multiple children with epidural pain management. The spinal outer sheath is extremely sensitive so potentially epidurals are not as low risk as advertised. I used a continuous BP monitor to show my high BP / migraine episodes. These are now controlled. Arachnoiditis can cause many diverse and strange symptoms in a patients body. So if you have had a few epidural treatments a scan for Arachnoiditis or spinal scarring could help you more towards your full diagnosis. Good luck.

This list is helpful. I'm picking up on training again after getting frustrated and quiting. My health has changed, and now I need my girl more than ever. Turns out I was more successful than I thought. I put my girl in her vest to see if she's still comfortable in it, and her demeanor and behavior changed completely. This list will help us to keep going!

Lactation Consultant and Migraine Sufferer here. Did it help with your Migraines? Also, Who was the Myofunctional Therapist you saw?

This is very nice to listen to. Thank you for posting. I laughed very hard. I have dysautonomia (not POTS) and migraines. The symptoms in your ear sound very migraine-like, i call the ear wooshing a "head rush". It is terrible. Also my sinusses are effected and my nose and eyes start running. My migraine begins in my eyes but eventually my ears become sensitive too, but like you said.... I am hypermobile too due to EDS. Thank you soooooo much for sharing this. Sending you a ton of comfort for those times you weren't really listened too by the medical system. Strength and courage!

I try to give dogs as much space as I can since I don’t know if they are aggressive, but at a mall (that was not pet-friendly), a large black German Shepherd jumped out from behind a kiosk as we were passing by. Luckily, I had enough space that it didn’t make contact with my service dog, it continued to bark as we quickly walked away. This is the kind of thing that happens to service dog handlers and it makes going out even more stressful than it already is, even at a place that you would think would be safe.